"In the beginning, my experience with cavernoma was a frightening and challenging journey. I didn't know I had it in my brain until I fell down the stairs. I was suffering from recurring déjà vu episodes, where I would feel like my soul was leaving my body, and these moments would be followed by intense fatigue after each episode. In addition, I dealt with severe headaches, dizziness from time to time, and difficulty concentrating. I was always tired, even when resting, which made it hard to get through the day. I also couldn't visualize the faces of people I knew, including my family and friends, which was terrifying. After each episode, I felt a deep sadness, as though I was facing something I couldn’t escape from. These symptoms profoundly affected my daily life.

When I met Dr. Allen Jeffrey Hall at The Neuro, he was the first person to explain that these episodes weren’t just passing feelings, but a form of epilepsy that affects the temporal lobe of the brain. I didn’t know that repeated déjà vu sensations could be linked to abnormal brain activity. We started treatment with medication to manage the episodes, though I knew the real solution was surgery. Deciding to undergo surgery was difficult, and it took me a year and a half of thinking about it, before I finally made the decision to move forward. Dr. Hall helped me understand my condition better and always listened to all my questions and concerns. He constantly reassured me that I was in good hands, and his knowledge and expertise helped me trust the possibility of surgery.

In December 2024, I underwent surgery. I felt a mix of fear and hope, and the operation was successful, thank God. After the surgery, I no longer suffered from the seizures, and I didn’t experience the severe headaches I used to. This was a huge step for me. But what surprised me most is the strange change in how I perceived people. I noticed changes in my neuro-visual processing, where I started seeing the people I knew as more beautiful, and even strangers appeared more beautiful to me. These changes might be the result of my brain reorganizing after the surgery, allowing me to see the world in a way I hadn’t expected.

Throughout this entire experience, one person who truly supported me was Prem, the President and CEO of Cavernous Malformation Canada. As part of their Care Navigation Program, she was always there to answer my questions, offer perspectives, and provide the encouragement I desperately needed. Her support was not just about giving information;  she supported me emotionally and gave me the strength to face my challenges. Her optimism and genuine care for my condition were an inspiration. I want to deeply thank her for her constant support and encouragement, which played a major role in alleviating my fears and helping me move forward with confidence.

Prem wasn’t just a guide during this journey; she was also a source of comfort. She reassured me when I was uncertain, reminded me that I wasn’t alone, and continued to encourage me to stay strong. Her kindness, patience, and consistent care for helping others like me made a big difference in my life. I can't thank Prem enough for her compassion and attention. She played a vital role in giving me the confidence to move forward, and I will always be grateful for her guidance and support.

Today, as I share this story, I realize how difficult this journey was, but I also recognize how full of valuable lessons it has been. The surgery was a crucial step in my healing, but the right support from those around me was essential in helping me overcome all the challenges. I will forever be grateful to Dr. Hall for his expertise and care at The Neuro, and to Prem for her endless support, warmth, and inspiring dedication to helping people like me."